“My baby boy was born with a part of his food pipe missing; what remained was intertwined with his windpipe. His condition was so critical that he had to have an emergency surgery within two days of his birth. We thought that would help him recover, but soon he started getting deadly infections. We have been to hell and back in the past few days; I had to sell the only piece of land I owned for a meagre sum, but even that is useless now. We need a lot of money to save our son but all financial options have closed for me.”-Ombir Singh, father.The baby boy was rushed to Delhi because his disease is so rare for which treatment is not available everywhereOmbir and Sangeeta live in Palwal district of Haryana, where advanced medical facilities do not exist. Their baby boy was born in a government hospital, just like his older siblings. He had to be shifted to Delhi soon after his birth because he was not able to feed or breathe properly.Ombir and Sangeeta were not prepared for the ment
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