Tuesday, 8 May 2018

Class XI Student With Rare Disease Has Weeks To Fight Death Because He Did Not Get Help In Time


“We didn’t know he was living with it for 8 years. It started with fever and cough, and now his body can’t make enough blood to keep him alive. It’s so debilitating that with each day, a different part of his body is being affected."When 18-year-old Manjunatha looks in the mirror now, he notices himself slowly becoming unrecognisable. The class 11 student was a sickly child, but when all his reports were normal every time Vrindamma and Maralasidappa took him to the doctor, they didn’t think much of it. His parents have now learnt that their son has a rare disorder that is not only slowly killing him, but also increasing his risk of developing other life-threatening diseases if left untreated.For years, they didn’t know he was suffering from a dangerous diseaseEver since he was just 10-years-old, Manjunatha would feel an unexplainable tiredness every now and then. After a few days it would go away, but never permanently. Every time Maralasidappa took him to the hospital ne
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