
It started when she was just 6 years old. Sayali would get dizzy, lose consciousness and fall. She would vomit profusely until she could not get off the ground. The family dreaded the diagnosis. It was Pulmonary Hypertension. Sayali had high BP in the vessels that take blood to the heart and lungs. She was managing her condition, but the family never knew that it was only getting worse.Sayali grew up feeling her heart and lungs get weaker inside “When we first heard the term, we did not quite understand. We thought – BP? Sayali is too young to have this problem. It took us a while to realize that the situation was much worse than we imagined. Her heart was not able to pump enough blood to her lungs. As a result, both the organs had to work hard.”Sayali needed oxygen therapy, and a lot of drugs. She was always short of breath, unable to walk, run, play or do anything that a child usually does. As a result, she grew up introverted and timid, with a sense of being different from
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