I had never even heard the name of this disorder till my son was diagnosed with it. It is so hard to explain to anyone that he is sick because he ‘looks’ fine. But it is slowly eating away at my son.My wife Sunita and I were very excited when we learned that we were going to have a baby. We had so many plans for him. But he was born ill and all we had in mind came crashing down when we discovered the nature of his illness. Our little boy has Thalassemia, a genetic disorder of the blood, due to which he needs regular transfusions and continued medication. We had no idea that our baby was so sickWhen Ram was born, he was healthy just like any other baby. But that lasted only for 3 months. Then our nightmare started, only we didn’t know it yet. He would get high fevers every 3-4 days and only a heavy dosage of antibiotics would make it go away. He was getting weaker by each day and sometimes he would just cry non-stop and we had no idea what was happening. Then his skin and eyes
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