“We kept pushing his surgery for 9 years because it was too expensive for us. Now he is lying in that emergency ward with hemoglobin level at 2, barely clinging to life. If we do not consent to the surgery now, then we will lose him just like we lost our daughter.”Mukilan is 19 years old. He has been sick for most of his life but for the first time, he has given up and feels like he is taking his last breaths. His body has stopped making blood. While he managed with medication for 9 years, his condition was getting worse, suddenly landing him in the ICU struggling to stay alive. Mukilan needs a bone marrow transplant to live the rest of his life.We lost a daughter to this disease already, and now it is trying to kill our sonMurugan and Hema are feeling a deep sense of grief today seeing their son in this state. They had two children, a daughter – one year older than Mukilan. Today, they are thinking about her, and how this all began.“When Mukilan was 10, he had a high fever.
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